Tuesday, April 15, 2014
April Update
Thursday, March 6, 2014
March Update
He loves tags and ribbons. He has a Taggies brand stuffed dog and he pulls the ribbons right up by his face to study them. He also finds the tags on his bibs and pulls on them so he can check them out too. He is definitely into imitating us now. He repeats our fake coughs and raspberries. He gets pretty vocal when he's trying to fight sleep and does a high pitched squeal.
Tuesday, February 11, 2014
Catch Up
I have fallen so behind on blogging! I'm going to try to catch up all in one post.
Life really hasn't been too exciting. Cold and flu season is in full force in Montana, so Cooper and I hardly ever leave the house.
Cooper turned 6 months old on January 14. He had a great checkup and was 11 lbs 6 oz and 21.85 inches. He was finally on the charts for weight. He was at 5% compared to other 29 weekers at 6 months old. His height is still below the chart... short like his mama.
On February 6, we went back to the clinic for the synagis shot and Cooper was 12 lbs 2 oz and 22.25 inches. I felt like he grew alot in length, but according to the measurement, not much. The good thing about him being so short is that he will fit in 0-3 month clothes awhile longer.
Cooper is so much fun now! He still smiles so much, and laughs, and always wants to interact with us. He pulls everything to his mouth! He enjoys sitting in his booster seat and likes playing on the ground on his back. He still dislikes laying on his belly, but will usually be content for a few minutes before wanting to flip over. I think his favorite play activity right now is when we make his legs do bicycle kicks. When I stop, he kicks his legs like he's telling me to do it again.
I love to watch him think. He stares at certain things, like a toy or his hand, and I can tell he's really studying it, trying to figure it out. He likes to touch everything too. He's started a new thing where he likes to rub my shirt, or the leather couch, and even the dogs fur once! He tried painting last week and loved it! He really studied the paint and looked at his hand while rubbing it with his fingers. It is amazing that the brain can work like that at such a young age!
He babbles often and sometimes gets very loud! It's a happy noise, I think he just likes to hear himself. If we do a fake cough, he coughs back. If we stick out our tounge, he starts moving his tounge around too. I just love to see him learn!
After all these positive updates, here is one negative. He fights sleep so bad! He can be completely content then gets very tired and screams when he realizes that he's about to fall asleep. It escalates to the point that nothing will sooth him. He eventually gets exhausted and we can get him to take a pacifier and fall asleep while we rock him. I mentioned it to the developmental consultant at our last home visit and she said that he starts out just trying to keep himself awake, but it gets to the point that he cannot calm himself down. She recommended massaging him and it works! This evening he started to escalate so I put him on his back and rubbed his legs, he immediately stopped crying and locked eyes with me. I'm hoping this continues to work until we can get through this phase!
I have been struggling with getting motivated to lose the pregnancy weight. For the first 3 months, I had the c-section recovery and then the excuse that Cooper was still in the hospital. Well Coop has been home for 4 months and I still haven't gotten motivated to work out. I know that I am motivated best by competition, so Jake and I are doing a challenge between the two of us. Each month whoever loses the most weight gets $100 to spend on whatever we want. We each have a different advantage. I have more excess weight to lose so it should come off easier. Jake's advantage is that he goes to the gym before work each day while I will have to work out at home without and equipment. I really want to win so I'll take any tips! We start tomorrow so we will be weighing in on the 12th of each month and I would like to lose about 30 lbs. I'm hoping we continue the competition every month until I reach that goal.
Friday, January 10, 2014
Favorite Things Friday - Baby Gear 0-3 Months
Sunday, January 5, 2014
Big Cooper
Tuesday, December 31, 2013
Last Post of the Year
Like everyone else on New Years Eve, I'm reflecting on the past year. From all of the posts on Facebook, it seems everyone can't wait to say good bye to 2013 and start 2014. I feel the complete opposite. 2013 was the best year of my life and I'm sad that time is moving so quickly!
Cooper amazes me every day with all of the new things he learns to do, and I am so proud when he shows development, but I don't want him to grow so quickly. I went through Cooper's clothes today, and packed up some of the smaller newborn clothes and it made me really sad. I know it's ridiculous and I do want my child to grow and thrive, but it still makes me sad that he's not going to be my baby forever.
On a happier note, here are some of the things Cooper has amazed us with lately:
He smiles all the time. All we have to do is talk to him or smile at him and he cracks a smile. Such a sweetie!
We've heard a few giggles. He really cracks up in his sleep, but I've gotten a few awake chuckles as well.
He tells very long stories. He gets on a roll jabbering and really shows off the facial expressions. He will furrow his brow and sound concerned, then raise his eyebrows and sound excited, then smile and squeal. It is so funny to listen to him!
He is going through a phase where he really dislikes tummy time, but he loves sitting or standing supported. He has such great head control. In fact people in public comment on how strong he is. I think it's because he is still so little that by size he looks like he's only about a month old. We have to explain that he's actually about 3 months adjusted age.
He is starting to reach out for items and actually grab them with his hands now. He usually doesn't hang on for very long, but he tries!
Cooper is teething again. I've heard in babies this young, they will have some discomfort but then the teeth recede back into the gum. He had a week that was fine, but the last few days he's been acting a little uncomfortable again. Lots of drooling, he loves when I rub his gums, and he really gnaws on his fists. I feel a spot on his gums that is elevated and hard, and it looks like possibly a tooth trying to break through. I would still be surprised if it does anytime soon. Most likely it will recede again.
Cooper gets his synagis shot on Thursday so I'll have a weight update them. For now here is a fun photo of him. We keep trying to put him on Diesel's back, but he just won't let him ride. We finally got Diesel to stand still with a peanut butter spoon bribe.
Friday, December 20, 2013
Favorite Things Friday - Baby Christmas Presents
Sunday, December 15, 2013
Friday, December 13, 2013
Favorite Things Friday - Skincare
Monday, December 9, 2013
Early December Update
The last two weeks have been pretty tame. We are settled back in at home and getting on a schedule. Last week was bitter cold in Montana, 5 days in a row that didn't even get into the positives, so Cooper and I have been staying in the warm house. Cooper is almost 5 months old, 10 weeks adjusted. In some ways he is still much like a newborn, in others he is developing very well.
Cooper still eats every two hours during the day. I continue to give him more in his bottle, adding a few mLs every few days, and he always eats it all then two hours later is hungry again. He's a little piggy! We are still nursing a few times a day. I let him eat as long as he wants and it's usually between 1 hour to an hour and a half. Sometimes he wants a bottle 30 minutes later. I'm trying to keep myself positive but it is getting frustrating when it takes so much time. We will continue working on it as I'm hoping that he gets stronger and quicker. My ultimate goal is to just stop pumping! I'm still adding to the stock pile of frozen breast milk so if I get to the point that I give up on breast feeding, I can stop pumping and still feed Cooper bottles from the stock pile for quite a few months.
Cooper still likes tummy time, but I think he likes playing on his back even more. He kicks and swings his arms around and gets so excited to interact with me. He also loves to sit up. I think he really likes to look around and sitting up is the best way to look around. We support his back, but he holds his head up all on his own. He is such a smiley baby! We are to the point that all I have to do is look at him and smile and he breaks out a huge grin. He does a little grunting chuckle sound, lots of squeals...and I swear one time he did a full on giggle! He loves when I sing! He is starting to figure out his hands. He usually just brings them to his mouth, but one time he grabbed my finger and took it to his mouth. I catch him really looking at things, studying them. He loves mobiles. When I put Cooper in his crib, he looks up at his animal mobile and smiles like they are his friends. It is so cute!
He is sleeping in his crib every night. I give him his last bottle sometime around 9 then put him in his crib. Sometimes he is already asleep, sometimes he's wide awake. If he's awake sometimes he is content to watch his mobile and fall asleep on his own, sometimes he needs his pacifier. When I get up in the middle of the night to pump, I wake him up for a bottle. There have been a few nights that I slept right through my alarms and Cooper sleeps on through the night. If I let him, he would sleep more than 8 hours, but the pediatrician recommends waking him at about 5 hours since he is still small for his adjusted age.
Last week, Cooper got another synagis shot. He was weighed and was 8lbs 11oz. He is still in newborn size clothes, but we finally started using size 1 diapers. Let me just say that we absolutely love our pediatrician, her nurse, and the immunization nurse. Any time I have a question, I am able to call the nurse on her personal office phone. If she doesn't answer right away, I always get a call back within an hour. I know they are very busy and have lots of other patients, but they all remember us and remember Cooper's health history.
I have been working on a weekly cleaning schedule and now that Cooper is able to spend more of his awake time entertaining himself, I'm able to get more chores done. Still not as much as I would like to get done, but enough for now. Jake's mom will be here in a couple of weeks and I know she will be glad to entertain Cooper so I'm planning to get some big organizing projects done. I'll end this post with another adorable picture of Cooper.
Monday, November 25, 2013
8 Pounds
We've had a great week! We drove to Seattle last Monday. We made the trip in one day and Coop was a great traveler, but we felt horrible that he was stuck in that car seat for so long so we made a lot of stops to let him stretch, which made the trip extra long!
On Tuesday, the first appointment was a video swallow study. They had me feed Cooper a bottle of this white liquid that shows on an x-ray. It was really cool to see exactly how he swallows! When he first started, they said he takes too many sucks before swallowing, so the liquid was pooling in the back of his throat and close to going into his lungs, so he was "micro asperating." Luckily as he ate he got into a rhythm and no longer had that issue. They cleared him to continue oral feeding. We just have to pace him in the beginning. And by the way, that white liquid was still very bright when Cooper spit it up all over Jake's shirt later that day!
Then we met with the feeding therapist that we saw the last time we were in Seattle. She observed him breast feeding. I have been nursing a few times a day, but it seems like he is always still hungry after 30 minutes and everyone tells me to stop him at 30 minutes so he doesn't burn too many calories. I also have to pump afterward, so I know he's not getting as much out as he could be. Then he acts hungry again at just 1 hour instead of his usual 2 hours. The therapist gave me some tips on positioning to help him get better latch to be more productive. I'm trying to be consistent with it, but when he gets hungry it is just easier to grab a bottle. I keep reminding myself that once we get the breastfeeding down, I can quit pumping. It's going to be a hard transition, but it's going to be so worth it!
Cooper had his bronchoscopy early Wednesday morning. The doctor came in for a pre-op and was pleasantly surprised that he could not hear Cooper breathing. No wheezing or squeaking! Sure enough, when he came to tell us the results he said Cooper's airway looks very good. He did not feel the scarring needed to be cut, but he did do a small balloon dilation just because it was convenient. He does not think Cooper will need another bronchoscopy!
He said that Cooper was having some trouble breathing while coming out of the anesthesia, so they had him on oxygen and were going to keep him overnight. A few hours after the operation, he was admitted to a room and they almost immediately took him of the oxygen and he did fine. I stayed bedside that night and he was allowed to leave the next morning. We took two days to make the trip home and made it here Friday night.
This weekend Cooper has been acting a little off. He had a little bit of a cough, but that seems to have gone away. He also seems pretty clingy. We have always been able to put Cooper in his bouncer or swing and he will either fall asleep or entertain himself by looking up and the bees on the mobile. Now he watches me walk away and starts crying. Not an I'm hungry cry, not a mad cry, not a sleepy cry, but a "bottom lip sticking out" sad cry. I'm hoping he is just going through a phase.
We went to the pediatrician this morning to fill her in on all of the results in Seattle. She agreed that he is probably just a little clingy because he's getting over the upset in his schedule cause by the trip and that he may have had a slight cold as well. She said once he feels better and gets back into a schedule, he will probably go back to how he was before. When he was weighed this morning he was 8 lbs 0.5 oz! Woo hoo! She also commented that he is getting chunky legs!
Even though he's been a little out of sorts, he has really developed a personality. He smiles so much now. All I have to do is sing or talk in a silly voice and he gives a big dimpled smile! He's still doing great with tummy time and story time. It's great that he can actually focus on the pictures now. He has discovered his hands. He grabs at everything now, like his ears or his feet or our fingers or my hair! Sometimes he takes his pacifier, but sometimes he gags on it or spits it out. I'm going that means it won't be too tough to wean him from it soon! Most of all, I think he loves it when Jake and I talk to him. The other day, Jake was making a train sound and told Cooper to say "woo woo" then Cooper did a quiet little "who." I know it was a fluke, but it was so cute!
My goal this week is to finish Cooper's birth announcement. I designed it back in September, but with him being readmitted for a few weeks in Sept/Oct, I've had to change the wording a bit, and now I'm just trying to get a decent photo of him to use on it.
Here is the photo of him while waiting for the operating last Wednesday. They had him in a tiny hospital gown... so cute!
Sunday, November 17, 2013
4 Months Old
We've had a great week. We started out the week with another visit to the feeding therapist. She gave us the green light to start breastfeeding 3 times a day. I still have to start him off using the breast shield, then a few minutes after he gets organized I can slip it off and he usually is able to relatch. We still have a lot of work to get transitioned to full time breast feeding, but we are on the right track!
On Thursday, we saw the pediatrician for the 4 month well baby check up. Cooper was 7 lbs 6 oz and 19.5 in long. The nurse said both measurements are at 0%, which didn't concern me because I assumed that was compared to full term 4 month olds, then she said that it was actually only compared to other 4 month olds that were also born at 29 weeks. So even for a preemie he's still tiny. The doctor said that she is not concerned because he is consistently gaining. He should still catch up in a year or so.
Cooper also got his 4 month shots that day. I definitely noticed a difference later that day. Poor guy just wanted to cuddle all day. I took advantage and held him most of the day. He was back to normal yesterday.
Our Quality Life Concepts consultant came by that day and gave me tons of ideas for interacting with Cooper. It's nice to have lots of ideas instead of doing the same songs or games over and over again. When I get a chance I'll try to type them all up to share.
I love how Cooper acts right now. He is such a great baby! He smiles when we talk to him, and especially when I sing to him. He is getting so strong and holds his head steady when we hold him in a sitting or standing position. He amazes me everyday! I'm proud of him, but still kind of sad that he's not going to be my little baby very long.
Cooper has his follow up appointments in Seattle next week. We will be leaving early Monday morning and hope to be home next weekend. We have some great habits going right now so I'm really hoping being away from home doesn't mess those up! Cooper can be put in bed awake and will fall asleep on his own. He also sleeps 5 hours at night, then another 3 after that. He eats every 2 hours during the day, so he definitely has his days and nights straight. I'm so pleased with how well he has taken to this night sleeping arrangement so I'm really hoping the long car trip and possible hospital admittance doesn't mess that up!
Here is a picture before going to the pediatrician on Thursday. Then the picture of Cooper on the day he left Benefis, at about 4 lbs and 2 months old. Big difference! I promise he does usually like being in his car seat, just not in either of these photos!
Wednesday, November 6, 2013
16 Weeks Old - 6 Week Adjusted Age
Last week I met our Quality Life Concepts consultant. This is a statewide program (although there are similar programs throughout the country) available for high risk children who might need a little extra help to be sure they are developing as expected. Cooper instantly qualified because of his prematurity. Our consultant visits every couple of weeks and we discuss any concerns Jake and I have. Then she finds resources to address those concerns. We don't really have any worries right now so she is just gathering a list of activities we can do to interact with Cooper. She is also getting me in contact with the La Leche league and other mom groups so I can get out of the house more.
I really enjoy being at home with Cooper, but I do miss socializing. I look forward to Cooper's appointments just so I have a reason to get out of the house. I want to keep Cooper home to keep him healthy, but I'm getting bored. Well, not really bored, I have plenty of chores to stay busy, I just feel like I'm missing out on being social.
On Friday, I took Cooper to the pediatrician to get Synagis, the RSV shot. Not all babies get this shot as it is over $1000 pre shot! RSV in a healthy, full term baby is just like a cold, but in a preemie it can be very serious. Cooper will get the shot once a month throughout the winter and spring. It does not make him immune to RSV, but will lessen the severity if he does get sick.
To figure out his disagree they had to weigh him. 6 lbs 11 oz! Seriously! I can't believe how big he is getting! He is growing like a weed now! That was on Friday, so I'm sure he must be over 7 lbs by now. The home health nurse comes tomorrow to weigh him so that what I'm hoping for. Newborn clothes are still big, but he's not swimming in them anymore.
Yesterday, Cooper had a hearing screening. He had failed while still in the NICU, but they told us his ear canal was probably just too small for the test. I was not concerned at all because he responds to our voices and startles at loud noises. Sure enough, he passed yesterday! He will need a follow up in April but he's doing great now!
We were working with a feeding therapist when we were in Seattle and she wanted us to only do half of his feeding with a bottle and finish the feeding through the tube. She also didn't want me to breastfeed other than dry nursing after pumping to keep him practicing. We weren't going to see her again until we go back to Seattle later this month. He has been doing so well eating from the bottle that I've actually been letting him take the whole feeding orally. He has been showing no signs of asperating so I went with my mother's intuition that tells me he ready to get rid of that dang NG tube. The pediatrician set us up with a feeding therapist here in town and we got to see her this morning. She said he looks great and to continue feeding him full feeds by bottle. She is also a lactation therapist and seems as eager as me to get him back to breastfeeding.
I so look forward to the day I can STOP pumping! I can't wait until I can wake up with Cooper, feed him, and go back to sleep when Cooper does. Now, I have to get up before Cooper to warm up his bottle, then when Cooper goes back to sleep I still have to pump, then prep the expressed milk for the next bottle, and wash the bottle and pump parts. Which means each time I wake up with Cooper, I will be awake an extra hour after he goes back to bed. I can't wait to JUST breastfeed! And I can't imagine all the extra time I will have during the day too! I'm so glad to at least have a plan to get to that point!
Here's a cute picture of father and son. We have been getting lots of Christmas catalogs in the mail, so Jake and Cooper were looking at one together.
Wednesday, October 30, 2013
Goodbye
Thursday, October 24, 2013
14 Weeks Old
I now see that I'm not going to be able to blog as often as I did when he was in the hospital.The is just no free time. When he's awake, I'm busy feeding or cuddling or playing with him. When he sleeps, I do household chores. My new goal is to do an update blog at least once a week.
Last Thursday, the home health nurse weighed Cooper and he was 5lbs 7.5 oz. She came back today and he is 5 lbs 14.5 oz. 7 oz gain in a week! He was also 17.75 inches long. This week, Cooper also transitioned from preemie to newborn clothes and diapers!
An interesting note, Cooper is 14 weeks old and we have yet to buy any diapers! They were supplied while he was in the hospital, and we recieved a few packs at the baby shower.
Another interesting note, Cooper has brown eyes already. We were pretty sure he would develop brown eyes because Jake's are brown and mine were brown when I was a kid. I'm just surprised they changed so fast!
Today, the rest of Jake squadron came home from the deployment, which means Jake's hunting buddy is home. As soon as Jake finishes his online class this weekend, they will head out for a hunting trip. He may be gone about a week, so Cooper and I have big plans to organize the basement.
Jake sold the couches from the basement last month, so now we have a nice empty room. I think that means I should set up the sewing desk and cutting table that used to be in the craft room that is now the guest room. No more sewing at the kitchen table!
Tuesday, October 15, 2013
Home Again/ 3 Months Old
Wednesday, October 9, 2013
Bronch #2
Then yesterday afternoon, ENT decided they wanted to get a second look at Cooper's throat before he goes home. So they scheduled him for his second bronchoscopy this afternoon. When OT/PT found out we were staying a couple more days, they scheduled his swallow study for Friday. We're pretty bummed about staying longer, but hoping that this means we won't have to come back as soon for the follow ups. Maybe next month instead of this month. His bronchoscopy looked pretty good. The scarring is coming back but they did anticipate that and hopefully as he gets bigger the scar will be less significant. He is still breathing great!
Everyone tells us how great this hospital is, but honestly, I would give anything to be back at Benefis right now. I won't use this blog to vent my frustrations, but being at a large "learning" hospital makes me truly appreciate the consistency and empathy we got at Benefis.
Here's our cutie in recovery from his bronch.
Sunday, October 6, 2013
12 Weeks
No joke... the ENTIRE day! This week he had his usual weekly conference posts due, but also has the midterm paper due this evening. We hadn't even started on the paper until yesterday. We both researched and typed away all day yesterday and most of today, but it's finally done! He probably wouldn't have signed up for an accelerated 8 week online course if he'd known we were going to be away from home. We're halfway done with political science, and once this course is done he will only need to take public speaking to be done with his associates degree!
So on with the Cooper update. Cooper had his hernia surgery Friday morning. He did so well! They did not want to have to intubate him again, so the plan was to give him an epidural. If he was still squirmy, they would give him a sedative to sleep. If he was still moving, they planned to completely put him under with anesthesia, which would mean he would probably need the breathing tube. The surgeon came to talk to us after and told us he was completely surprised that the epidural worked perfectly and Cooper slept on his own, without needing anything extra! He said the entire surgery couldn't have gone any better! Cooper had Tylenol for the pain for the first day, but yesterday at about noon we decided to not give it to him to see how he does and he has been happy without it.
He does still have a feeding tube. OT/PT has been working with him to make sure he is not asperating while eating. Depending on how long this therapy takes, we may be here for another couple of weeks or they may send him home with a feeding tube. I am so ready for him to just be off all support, but if he needs it and it means we can go home sooner, it is worth it. The feeding tube will be more convenient than the oxygen was as the feeding tube can be capped off and disconnected from the pump, so most of the time he will be easily mobile.
Today Cooper is 12 weeks old. I'll try to update as we find out the plans, but as of now they don't really have a plan. They want to set up a feeding plan and make sure he is gaining on his own, then we will go from there.
Monday, September 30, 2013
For the caregivers at Benefis
At about midnight they took off his cannula and he has been doing great breathing on his own! I just love his cute little nose!
Friday, September 27, 2013
Waiting
His heart rate has been low all morning, 80-90, but the doctor feels certain this is because of the high doses of the medicine he was given to control the swelling from his ENT operation. Once that medicine wears off he should get back to his baseline heart rate of 140-150.
As of now, we are just waiting for his hernia surgery. He is on the schedule for next Friday, October 4th. The plan is to wean him off respiratory support again, then when he goes to the OR, they may do a spinal anesthesia so he will not have to be intubate again.
He had really chunked up in the last week. Last night he was 4 lbs 12 oz. Compared to other 40 weekers that's 0.03%. He's still a little guy.
The Ronald McDonald House is going to work out great! It's about a 10 minute walk from my room to Cooper's NICU room. It's nice to get outside too.




